Discover expert insights on POTS and Dysautonomia for those with Ehlers-Danlos Syndrome (EDS) & Hypermobility Spectrum Disorder (HSD). Learn about symptoms, triggers, management strategies, and treatment options to improve your quality of life.
When You Keep Hearing “I Don’t Treat That” If you live with EDS, POTS, or MCAS, you’ve probably heard it more than once: “I’m not familiar with that,” or “That’s not really something I treat.” It can feel confusing, painful, and incredibly isolating. When your life is being shaped by these conditions, it’s hard to […]
Why Don’t More Doctors Treat EDS, POTS, and MCAS? Read More »
How to Enjoy the Music Without Paying for It for Days After You Deserve Joy — Not Just Survival Living with POTS can make social plans feel risky. Concerts mean standing, heat, crowds, long lines, and adrenaline — all things that can push symptoms into overdrive. Many people stop going altogether because the crash afterward
Going to Concerts with POTS Read More »
When Even Standing Feels Like a Workout If you live with POTS, exercise can feel impossible. Your heart races. Your vision fades. Your body feels like it’s betraying you. Being told to “just work out more” can feel insulting when you’re struggling just to stay upright. But the right kind of exercise can slowly retrain
Exercise with POTS The CHOP, Dallas & Levine Protocols Read More »
Safe Dosing, Options, and Simple Swaps Why Salt and Fluids Matter So Much in POTS For people with POTS, symptoms aren’t caused by dehydration alone — they’re driven by low effective blood volume and impaired autonomic regulation. Salt helps your body retain fluid, which increases circulating volume and improves blood flow to the brain. Fluids
Salt & Hydration Protocols for POTS Read More »
The Part No One Prepares You For Living with POTS isn’t just about managing symptoms. It’s about managing everyday life in a body that doesn’t regulate itself well. Some days feel predictable. Others don’t. What makes the biggest difference over time isn’t one miracle treatment — it’s small, repeatable strategies that support your nervous system
Living with POTS: Practical Daily Strategies That Actually Help Read More »
Why Compression Comes Up So Often with POTS If you have POTS, you’ve probably been told to “try compression.” And then… nothing else. No explanation. No guidance. Compression isn’t magic, but when used correctly, it can be a powerful tool for symptom management. Understanding why it helps makes it much easier to use consistently. What
Compression Garments 101: What’s Best for POTS Read More »
When Your Symptoms Feel Random — But Aren’t Dizziness. Palpitations. Fatigue that comes out of nowhere. When POTS symptoms fluctuate, it’s easy to feel unsure of what’s really happening. Tracking heart rate and blood pressure can turn confusion into clarity both for you and your providers. Patterns matter — and your body is often trying
Heart Rate & Blood Pressure Tracking for POTS Read More »
When Your Body Feels Panicked but Your Mind Isn’t You can feel shaky, wired, short of breath, and overwhelmed — even when nothing feels emotionally wrong. That disconnect is confusing and often frightening. Many women go to see a doctor complaining of these symptoms and are told it’s anxiety because the symptoms look like anxiety.
Maybe It’s Not Anxiety — Maybe It’s POTS Read More »
When You’re Doing Everything Right — and Still Feel Dizzy If you’ve tried electrolyte drinks and still feel lightheaded, fatigued, or unstable, you’re not doing anything wrong. This is a common frustration in the POTS community. Many people assume all electrolyte supplements work the same — but they don’t. Understanding why some fall short can
Why Some Electrolyte Supplements Don’t Work for POTS Read More »
When What Used to Be Manageable Suddenly Isn’t If your POTS symptoms feel harder to control than they used to be, you’re not imagining it. Many people experience periods where dizziness, fatigue, palpitations, or brain fog suddenly feel that they are getting worse. This can feel scary, especially when you’re doing “everything right.” The reality
Why Are My POTS Symptoms Getting Worse? Read More »
