Joint Hypermobility

Normal Labs with EDS and Hypermobility Can Feel Like a Dead End Few things feel more defeating than being in real pain and hearing, “Your labs are normal.” For many people with EDS or HSD, this moment becomes a turning point — not toward answers, but toward doubt. You may start questioning your body or […]

The Scan Says One Thing. Your Body Says Another. Many people with EDS are told, “Your MRI looks fine,” while living in daily pain. That moment can feel confusing, invalidating, and defeating. You start to wonder if you’re missing something — or worse, if the pain is somehow your fault. The truth is, normal imaging

The Search for the “Right” Doctor Can Feel Endless If you’ve been diagnosed with EDS or suspect you’re hypermobile, you’ve probably asked this question more than once. Which specialist should I see if I have EDS or Hypermobility? Geneticist? Rheumatologist? Orthopedist? Cardiologist? Everyone seems to give a different answer. The truth is, many patients bounce

When a Number Doesn’t Tell the Whole Story If you’ve ever been told you’re “not hypermobile enough” based on a quick exam, you’re not alone. Many people walk away from appointments feeling confused or dismissed after hearing their Beighton score doesn’t meet a cutoff for EDS and Hypermobility. That experience can be deeply frustrating, especially

Welcome back to the Bendy Club blog! Joint dislocations can be a common and painful recurring issue for individuals with Hypermobility Spectrum Disorder (HSD) and Ehlers-Danlos Syndrome (EDS). Knowing how to prevent and manage these dislocations is crucial for maintaining your joint health and quality of life. Let’s dive into practical tips and strategies to

Welcome back to the Bendy Club blog! This week, we’re diving into a topic that’s close to the hearts of many in our community: managing pain without medication. For those with Hypermobility Spectrum Disorder (HSD) and Ehlers-Danlos Syndrome (EDS), chronic pain is a daily reality. While medications can help, non-pharmacological methods offer natural relief and

Welcome back to the Bendy Club blog! This week, we’re diving into the world of collagen supplements for EDS and hypermobility and their impact on joint health. For those with Hypermobility Spectrum Disorder (HSD) or Ehlers-Danlos Syndrome (EDS), maintaining joint health is crucial. Let’s explore how collagen supplements might be a beneficial addition to your

Welcome back to the Bendy Club blog! This week, we’re diving into the incredible benefits of Omega-3 fatty acids, particularly their role in reducing inflammation. For those with Hypermobility Spectrum Disorder (HSD) and Ehlers-Danlos Syndrome (EDS), managing inflammation is key to maintaining a better quality of life. Let’s explore how Omega-3s can be a powerful

Welcome back to the Bendy Club blog! This week, we’re focusing on exercises that are beneficial and those to avoid if you have Hypermobility Spectrum Disorder (HSD) or Ehlers-Danlos Syndrome (EDS). Exercise is crucial for maintaining strength and stability, but knowing which exercises are safe is key to avoiding injury. Why Exercise Matters Exercise can

Welcome back to the Bendy Club blog! This week, we’re discussing a headline that has made its way around the hypermobility space. In 2023 a study came out called Folate-dependent hypermobility syndrome: A proposed mechanism and diagnosis. This was picked up by the media with headlines everywhere saying things like “Folate Causes Hypermobility”. Let’s look